| Edinburgh
& Lothian Group |
|
Chairman
John
Bishop
26 Murrayfield Drive,
Edinburgh. EH12 6EB
Tel: 0131 337 7472
email:
JohnBishop@phonecoop.coop
|
|
SUPPORTING SUFFERERS -
SUPPORTING CARERS |
| |
Meetings
The Edinburgh & Lothian Support Group meets
every two months, in Maggie's Centre, The Stables, Western
General Hospital, Crewe Road South, Edinburgh EH4 2XU.
See also details below for meetings at St John's Hospital,
Livingston. |
| Meetings
are free and we usually have a guest speaker, expert in some
form of Prostate Cancer treatment and management, or a sharing
session with members - sufferers and carers - contributing.
Meetings
also provide patients with an opportunity to chat informally
with fellow patients and carers over a cup of coffee.
Do
come along and bring your partner.
Our
membership has grown. We have about 100 on our mailing list,
and at the meetings we see up to half that number of patients
and carers, so there are plenty of people to talk to. New
patients are referred to us by staff at the Western General
Hospital (the Specialist Nurse counsellors), or learn about
the Group from existing members or from our publicity efforts |
|
New
Publication
One of our members,
Chris Garner, has recently published a book "Natural
approaches to prostate Cancer, a personal perspective",
a thought provoking account of his approach to dealing with
prostate cancer, based on direct experience. Everything
he writes about, he has tried out himself. You may not agree
with all his observations, but this remains an innovative,
challenging and humane work.
This
book is published free of charge by our group. Hard copies
are in stock at the Maggie's Centre, The Stables, Western
General Hospital, Crewe Road, Edinburgh. EH4 2XU. Although
the work has no charge and costs have been carried by the
Edinburgh Support Group, donations are welcome and will
be used to to further the work of Maggie's Centres. Cheques
should be made out to Maggie's Centre. Please write Prostate
Book on the back of your cheque and send with your request
to the Edinburgh Maggie's Centre at the address above.
Edinburgh
Maggies centre: Telephone 0131 537 3131
Email: edinburgh@maggiescentres.org
DOWNLOAD
A FREE COPY OF THE BOOK IN PDF FORMAT BY CLICKING HERE
|
|
Edinburgh
Group Newsletter
Click
on this link to read our Winter 2009 newsletter in .pdf format
Click
on this link to read our Summer 2009 newsletter
Click
on this link to read our Winter 2008 newsletter
Or
this link for the older Summer 2008 Newsletter
Guest
Speaker programme and events:
MEETINGS
AT ST JOHN'S HOSPITAL, LIVINGSTON
Meetings of the Livingston Group - all at the Macmillan Centre,
St John's Hospital, West Lothian. Meetings are every other month.
Attendances average between 30 and 40.
Meetings
this session:-
•
Wednesday January
20th at 7 p.m.
•
Wednesday March
17th at 7 p.m.
For more info, e-mail Charlie Hogg on: chsc14012@blueyonder.co.uk
RECENT
MEETINGS AT THE MAGGIES' CENTRE, WESTERN GENERAL HOSPITAL
•
Thursday 4th
February 2010 at 7 p.m.
We warmly invite you to our next meeting. Carers and friends are
especially welcome. There will be refreshments available from 6.45
p.m. and we aim to finish by 9.00 p.m.
At the beginning of the meeting there will be an opportunity to
meet with other people who are facing or undergoing your form of
treatment, to raise questions and share information. As usual there
will be a “New Members” group to welcome the recently
diagnosed. A Urology Clinical Nurse Specialist and Maggie’s
Psychologist will also be present to help answer your issues. As
a result of requests from members, an additional group will discuss
‘End of Life’ issues in a room separate from the main
meeting venue.
Our guest speakers from 7.45 – 8.45 are both experts in aspects
of personal finance and should be able to deal with any queries
you may have on these subjects.
John Elliot is a partner and chairman of the Edinburgh legal firm,
Lindsay’s. He’s involved in financial planning, tax,
wills, trusts and powers of attorney. A member of the Society of
Trust and Estate Practitioners, he is also authorised to provide
investment advice by the Financial Services Authority.
Julia Bain is Macmillan Welfare Rights Officer based in West Lothian.
The Macmillan nurses are well- known for the practical, medical
and emotional support they provide to patients and their families,
but their role also extends to advice and information on financial
matters, notably benefits.
Other
meetings this session:-
•
Thursday 1st
April 2010 at 7 p.m.
•
Thursday 3rd
June 2010 at 7 p.m.
New
coffee machine at the HEBA Centre - Western General Hospital
Peter Phillips initiated the supply and donation by the Group of
a very welcome coffee machine for the HEBA Centre at the WGH. Gratefully
received!
A
small group for those with advanced prostate cancer meet at Maggie's
Centre. This group is chiefly intended for those men and their carers
for whom hormone therapy (Zoladex etc.) is no longer effective.
We
continue to monitor evidence of the impact of our Lottery-funded
special publicity campaign through Hearts’ and Hibs’
grounds and in the local press. We even picked up evidence of the
kind of response hidden from us - of men going to see their GP for
the first time.
We run a regular series of feature adverts in the Evening News,
Scotsman and Metro newspapers.
The
Group's newsletter initiated and edited by Larry Foster, is well
established as an important part of our work, in seeking to fulfil
our aims. It helps to maintain contact with those on our mailing
list who find it difficult to attend our meetings.
Our
committee continue to wrestle with the challenge of meeting the
needs of sufferers and carers spanning a very wide range of experiences,
from the newly diagnosed, especially those facing a difficult choice
of treatments to the increasing number who have been through a course
of chemotherapy. Our aim will be to try to ensure that every group
meeting includes an opportunity for each member to talk over his
own situation and questions with others, who can also speak and
share from experience.
The
Group's introductory leaflet has been simplified. It now carries
names and telephone numbers for anyone wishing to talk to one of
us about a particular treatment option. We continue to field a number
of varied enquiries by telephone.
For
advance notice of our meetings, events and guest speakers,
please contact us.
To contact us and for
specific advice about various treatments, talk to:
Managing
PSA:
Peter Phillips: 0131 664 8858 E-mail: scottishflyer@gmail.com
Radical
Prostatectomy:
Charlie Hogg: 01506 845981 E-mail: chsc14012@blueyonder.co.uk
Radiotherapy:
Kerry Napuk: 0131 667 3274 E-mail k@napuk.demon.co.uk
Watchful
Waiting
(and dietary and complementary therapies)
Chris Garner: 0131 552 8360 E-mail: cgarner@eccosse.net
Brachytherapy:
Jim Sommerville: 01506 890925
If you would like more information about our Support Group, would
like to be put on the mailing list to receive advance notice of
meetings etc. or just to have a chat about your problems, please
contact either of the following office bearers:
John
Bishop, Chairman
26 Murrayfield Drive,
Edinburgh. EH12 6EB
Tel: 0131 337 7472
email: JohnBishop@phonecoop.coop
Charlie Hogg: 01506 845981
e-mail: chsc14012@blueyonder.co.uk
Forbes
Craig , Secretary
e-mail: pcsseandl@googlemail.com
|
