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Edinburgh
& Lothian
Group |

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Chairman:
Malcolm
Goldsmith,
82
Woodfield Park, Colinton,
Edinburgh. EH13 0RB
0131 441 9881
e-mail: mcg@malcy.net
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SUPPORTING
SUFFERERS -
SUPPORTING CARERS |
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Meetings

The
Edinburgh & Lothian Support Group meets every two months,
in Maggie's Centre, The Stables, Western General Hospital,
Crewe Road South, Edinburgh EH4 2XU. See also details below
for meetings at St John's Hospital, Livingston. |
Meetings
are free and we usually have a guest speaker, expert in some
form of Prostate Cancer treatment and management, or a sharing
session with members - sufferers and carers - contributing.
Meetings
also provide patients with an opportunity to chat informally
with fellow patients and carers over a cup of coffee.
Do
come along and bring your partner.
Our
membership has grown. We have about 100 on our mailing list,
and at the meetings we see up to half that number of patients
and carers, so there are plenty of people to talk to. New
patients are referred to us by staff at the Western General
Hospital (the Specialist Nurse counsellors), or learn about
the Group from existing members or from our publicity efforts.
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Edinburgh
Group Newsletter
Click
on this link to read our latest newsletter in .pdf format
Guest
Speaker programme and events:
AT
ST JOHN'S HOSPITAL, LIVINGSTON
Meetings of the Livingston Group - all at the Macmillan
Centre, St John's Hospital.
Wednesday October 15th 2008 at 7 p.m. - Dr Axel
Thomson will give an illustrated talk on 'Research into how the
prostate grows in embyonic development and in Cancer'
For
your Diary - 2009 Meetings - Livingston Group
Wednesday 21st January 2009 at 7 p.m.
Wednesday 11th March 2009 at 7 p.m.
Wednesday 6th May 2009 at 7 p.m.
Wednesday 5th August 2009 at 7 p.m.
Wednesday 14th October 2009 at 7 p.m.
For more info, e-mail Charlie on: chsc14012@blueyonder.co.uk
AT
THE MAGGIES' CENTRE, WESTERN GENERAL HOSPITAL
Thursday
4th September 2008 at 7 p.m. - Impotence and Incontinence
- Karen Campbell and Alasdair Innes, both of the Nurse Urology Department
at the Western General will speak.
Thursday
6th November 2008 at 7 p.m. - Presentation from a GP (Dr
Miliken)
Thursday
4th December 2008 at 7 p.m. - Christmas Social.
For
your Diary - 2009 Meetings - Edinburgh Group
Thursday
5th February 2009 at 7 p.m.
Thursday
2nd April 2009 at 7 p.m.
Thursday
4th June 2009 at 7 p.m.
Thursday
3rd September 2009 at 7 p.m.
Thursday
5th November 2009 at 7 p.m.
Thursday
3rd December 2009 at 7 p.m.
A small
group for those with advanced prostate cancer meet at Maggie's Centre.
This group is chiefly intended for those men and their carers for
whom hormone therapy (Zoladex etc.) is no longer effective.
We
continue to monitor evidence of the impact of our Lottery-funded
special publicity campaign through Hearts’ and Hibs’
grounds and in the local press. We even picked up evidence of the
kind of response hidden from us - of men going to see their GP for
the first time.
We run a regular series of feature adverts in the Evening News,
Scotsman and Metro newspapers.
The
Group's newsletter initiated and edited by Chris Garner, is well
established as an important part of our work, in seeking to fulfil
our aims. It helps to maintain contact with those on our mailing
list who find it difficult to attend our meetings.
Click
on this link to read our latest newsletter in .pdf format
Our
committee continue to wrestle with the challenge of meeting the
needs of sufferers and carers spanning a very wide range of experiences,
from the newly diagnosed, especially those facing a difficult choice
of treatments to the increasing number who have been through a course
of chemotherapy. Our aim will be to try to ensure that every group
meeting includes an opportunity for each member to talk over his
own situation and questions with others, who can also speak and
share from experience.
The
Group's introductory leaflet has been simplified. It now carries
names and telephone numbers for anyone wishing to talk to one of
us about a particular treatment option. We continue to field a number
of varied enquiries by telephone.
For
advance notice of our meetings,
events and guest speakers, please contact us.
To
contact us and for
specific advice about various treatments, talk to:
Hormone
Therapy:
Managing
PSA:
Peter Phillips: 0131 664 8858 E-mail: scottishflyer@gmail.com
Radical
Prostatectomy:
Charlie Hogg: 01506 845981 E-mail: chsc14012@blueyonder.co.uk
Radiotherapy:
Kerry Napuk: 0131 667 3274 E-mail k@napuk.demon.co.uk
Watchful
Waiting
(and dietary and complementary therapies)
Chris Garner: 0131 552 8360 E-mail: cgarner@eccosse.net
Brachytherapy:
Jim Webster: 0131 625 0322 or 01250 873723
E-mail: JIKW@aol.com
If you would like more information about our Support Group, would
like to be put on the mailing list to receive advance notice of
meetings etc. or just to have a chat about your problems, please
contact either of the following office bearers:
Malcolm Goldsmith, Chairman
82
Woodfield Park, Colinton,
Edinburgh. EH13 0RB
e-mail: mcg@malcy.net
Peter
Phillips, Vice Chairman,
Burdiehouse Mains Farmhouse,
49 Burdiehouse Road,
Edinburgh. EH17 8SG
e-mail: scottishflyer@gmail.com
Charlie Hogg: 01506 845981 E-mail: chsc14012@blueyonder.co.uk
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