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Resources
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Your
own doctors, nurses and others in your health care team are the
only people who can tell you about your particular problem and
its treatment.
However, if you would like to read some more general information
now, you may find these suggestions helpful...
WEB
SITES
Prostate
Cancer Charity (The)
3 Angel
Walk, London W6 9HX
Tel: 0845 300 8383
Currently
offers the UK's only nurse led dedicated prostate cancer phone
line, staffed by specialist nurses, a list of support contacts,
publications, newsletters as well as carrying out scientific
research into the causes and treatments for prostate cancer.
TheProstate
Cancer Charity has been successful in securing funding from
the Big Lottery Fund for an innovative new project (beginning
in May 2006) targeting older men (aged 65+) with prostate
cancer in the West of Scotland. The grant is being used to
encourage and support older men with prostate cancer and their
carers to access the support and information services available
so that they receive the best possible care and treatment.
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Scottish
Medicines Consortium
Providing
advice about the status of newly licensed medicines. The remit
of the Scottish Medicines Consortium (SMC) is to provide advice
to NHS Boards and their Area Drug and Therapeutics Committees
(ADTCs) across Scotland about the status of all newly licensed
medicines.
Look
at this link for information on Decapeptyl SR, Docetaxel and
Zoledronic Acid (Zometa) |
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N.I.C.E.
National Institute for Health and Clinical Excellence.
NICE
is an independent organisation providing National guidance
on promoting good health and preventing and treating ill
health. Its guidance is restricted to patients in England
and Wales but its Guideline 9 (launched February 2008) on
the Diagnosis and Treatment of Prostate Cancer is clear
and easy to read. |
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Prostate
Videos
This site comes with something of a health warning. Firstly
it contains a number of videos which may be very slow to load
on dial-up internet connections. Secondly, although believed
to be accurate, the videos are of American origin and may
cover treatments not available in Scotland. Thirdly, it does
contain information about diagnosis, treatment and management
of prostate problems that is pretty down to earth and does
not avoid difficult issues.
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Urological
Cancers North
Tackles urological cancers in the
North of Scotland through education, treatnment, support and
research. This
site has a useful forum for its members which all can read.
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Prostate
Cancer Support Association
BM Box 9434, London WC1N 3XX, England
Tel: 0845 601 0766
E-mail: psec@fdn.co.uk
Offers free, confidential support and information. Has national
helpline, and regional and local support groups. Produces
publications.
PSA
is a national association of self-help and support groups.
It is managed by and for men with prostate cancer, their families
and other interested groups. The site includes information
on the disease and therapies. |
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Prostate
Scotland
A new charity that has been set up
to educate men about their prostate. Site still under development. |
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- Cancerbackup
3 Bath
Place, Rivington Street, London EC2A 3JR
Tel: +44 (0) 20 7696 9003 (Office)
Freephone: 0808 800 1234
Tel:
+44 (0) 20 7739 2280 (standard rate)
(Lines
staffed by cancer specialist nurses, Monday to Friday
9am to 8pm GMT)
- Cancerbackup's
mission is to give cancer patients and their families
the up-to-date information, practical advice and support
that they need to reduce the fear and uncertainty of cancer.
Also what benefits and other financial help are available
from the Government.
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UK
Prostate Link
Intelligent
signposts to high quality prostate cancer information, commissioned
by The Prostate Cancer Charter for Action and backed by Department
of Health funding. |
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The
Prostate Cancer Research Centre
3rd
Floor, 67 Riding House Street, London W1W 7EJ
Tel/Fax 020 7679 9366
e-mail:
info@prostate-cancer-research.org.uk
They
have published and distributed over 75,000 copies of a free
booklet called "The treatment of Prostate Cancer - Questions
and answers". |
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- Prostate
Help Association
- All
types of prostate problems.
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CancerIndex
An
extremely comprehensive and well-resourced site with a wealth
of information on many cancers and links to a wide range of
other sources of information. |
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Prostate
Cancer Foundation
An American Site. They claim to be the World's largest philanthropic
source of support for Prostate Cancer research worldwide.
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CancerHelp
UK
CancerHelp UK, Cancer Information Department,
Cancer Research UK, PO Box 123 Lincoln's Inn Fields, London
WC2a 3PX
E-mail: cancerhelpuk@cancer.org.uk
CancerHelp UK is a free information service
about cancer and cancer care for people with cancer and their
families. It is brought to you by Cancer
Research UK. They believe that information about cancer
should be freely available to all and written in a way that
people can easily understand. |
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| Institute
of Cancer Research
The Institute of Cancer Research, 123 Old Brompton Road,
London SW7 3RP
Tel: +44 (0) 20 7352 8133
The institute is a centre of excellence employing some of
the world's leading scientists working on cutting edge research.
Not a self help group, but their web site provides links
to many cancer support and information resources for patients
and carers. Includes Everyman - action against
male cancer - the Institute of Cancer Research's campaign
to raise awareness of testicular and prostate cancer. |
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Orchid
Cancer Appeal
St. Bartholomew's Hospital, London EC1A 7BE
Tel: (020) 7601 7808
Email: info@orchid-cancer-appeal.co.uk
Website: orchid-cancer.org.uk
Dedicated to funding research into diagnosis, prevention and
treatment of prostate and testicular cancer as well as promoting
awareness of these previously neglected diseases. Produces
written information on prostate cancer. |
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1in4men.com
has a specific focus on urinary problems such as BPH which
affecte one in four men over the age of 40 in the UK. |
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Malecare
An
American site with information on Support Groups and Prostate
Cancer treatments |
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Health6.com
An American site. Designed to be a one stop destination
for anything that you can think of that is about or related
to health. |
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Leaflets
and booklets
Prostate
problems? An introduction
Prostate Research
Campaign UK leaflet. Covers symptoms of prostate problems, benign
prostatic hyperplasia (BPH), prostatitis, and prostate cancer.
The prostate gland owner’s manual
Prostate Cancer
Charity booklet. Explains what the prostate gland is, what might
go wrong with it, and what the symptoms of prostate cancer are.
Prostate cancer – the facts
Prostate Cancer
Charity leaflet. It covers illness, diagnosis, treatments, and
commonly asked questions.
Prostate cancer – everything you need to know
Prostate Cancer Charity
booklet. Detailed information on diagnosis, treatment, pain management,
living with cancer, potency and impotence, benefits and sick pay.
The treatment of prostate cancer – questions and answers
Prostate Cancer
Research Centre/Royal College of Surgeons booklet.
Covers illness, diagnosis and treatment options.
Free from PCRC - phone 020 7679 9366. or e-mail:
info@prostatecancerresearch.org.uk
Understanding
cancer of the prostate
Cancer BACUP booklet. You can view this on-line.
Target
prostate
Association of the British Pharmaceutical Industry booklet. This
gives information about the prostate gland and prostate disorders,
including cancer. It covers drug and hormone therapies, and brachytherapy.
Available on the ABPI
web site (Follow the Links: APBI publications > Patients
and their Carers > Target Prostate).
Books
Prostate
cancer – what every man should know about the latest tests,
treatments and possible prevention
Philip Dunn, Ostrich Publishing, 1999. ISBN: 0 952734 41 9.
Costs £7.99 plus £1 p&p
The prostate: small gland, big problem
Prostate Research Campaign, 2000. ISBN: 1 899541 74 8. Costs
£8.95 (includes p&p)
Try
your local library, or order direct from the publisher.
You
could also try the Macmillan
website which lists a number of books on the subject
MORE
UK WEBSITE LINKS
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