Where can I get more information?

Your own doctors, nurses and others in your health care team are the only people who can tell you about your particular problem and its treatment.

However, if you would like to read some more general information now, you may find these suggestions helpful...

  WEB SITES

Prostate Cancer Charity (The) 3 Angel Walk, London W6 9HX Tel: 0845 300 8383 Currently offers the UK's only nurse led dedicated prostate cancer phone line, staffed by specialist nurses, a list of support contacts, publications, newsletters as well as carrying out scientific research into the causes and treatments for prostate cancer. TheProstate Cancer Charity has been successful in securing funding from the Big Lottery Fund for an innovative new project (beginning in May 2006) targeting older men (aged 65+) with prostate cancer in the West of Scotland. The grant is being used to encourage and support older men with prostate cancer and their carers to access the support and information services available so that they receive the best possible care and treatment.
Prostate Cancer Support Association BM Box 9434, London WC1N 3XX, England Tel: 0845 601 0766 E-mail: psec@fdn.co.uk Offers free, confidential support and information. Has national helpline, and regional and local support groups. Produces publications. PSA is a national association of self-help and support groups. It is managed by and for men with prostate cancer, their families and other interested groups. The site includes information on the disease and therapies.
Scottish Medicines Consortium Providing advice about the status of newly licensed medicines. The remit of the Scottish Medicines Consortium (SMC) is to provide advice to NHS Boards and their Area Drug and Therapeutics Committees (ADTCs) across Scotland about the status of all newly licensed medicines. Look at this link for information on Decapeptyl SR, Docetaxel and Zoledronic Acid (Zometa)
N.I.C.E. National Institute for Health and Clinical Excellence. NICE is an independent organisation providing National guidance on promoting good health and preventing and treating ill health. Its guidance is restricted to patients in England and Wales but its Guideline 9launched February 2008) on the Diagnosis and Treatment of Prostate Cancer is clear and easy to read.
Cancerbackup 3 Bath Place, Rivington Street, London EC2A 3JR Tel: +44 (0) 20 7696 9003 (Office) Freephone: 0808 800 1234 Tel: +44 (0) 20 7739 2280 (standard rate) (Lines staffed by cancer specialist nurses, Monday to Friday 9am to 8pm GMT) Cancerbackup's mission is to give cancer patients and their families the up-to-date information, practical advice and support that they need to reduce the fear and uncertainty of cancer. Also what benefits and other financial help are available from the Government.
UK Prostate Link Intelligent signposts to higk quality prostate cancer information, commissioned by The Prostate Cancer Charter for Action and backed by Department of Health funding.
The Prostate Cancer Research Centre 3rd Floor, 67 Riding House Street, London W1W 7EJ Tel/Fax 020 7679 9366 e-mail: info@prostate-cancer-research.org.uk They have published and distributed over 75,000 copies of a free booklet called "The treatment of Prostate Cancer - Questions and answers".
Prostate Help Association All types of prostate problems.
CancerIndex An extremely comprehensive and well-resourced site with a wealth of information on many cancers and links to a wide range of other sources of information.
Prostate Cancer Organisation An American Site. They claim to be the World's largest philanthropic source of support for Prostate Cancer research worldwide.
CancerHelp UK CancerHelp UK, Cancer Information Department, Cancer Research UK, PO Box 123 Lincoln's Inn Fields, London WC2a 3PX E-mail: cancerhelpuk@cancer.org.uk CancerHelp UK is a free information service about cancer and cancer care for people with cancer and their families. It is brought to you by Cancer Research UK. They believe that information about cancer should be freely available to all and written in a way that people can easily understand.
Institute of Cancer Research The Institute of Cancer Research, 123 Old Brompton Road, London SW7 3RP Tel: +44 (0) 20 7352 8133 The institute is a centre of excellence employing some of the world's leading scientists working on cutting edge research. Not a self help group, but their web site provides links to many cancer support and information resources for patients and carers. Includes Everyman - action against male cancer - the Institute of Cancer Research's campaign to raise awareness of testicular and prostate cancer.
Orchid Cancer Appeal St. Bartholomew's Hospital, London EC1A 7BE Tel: (020) 7601 7808 Email: info@orchid-cancer-appeal.co.uk Website: orchid-cancer.org.uk Dedicated to funding research into diagnosis, prevention and treatment of prostate and testicular cancer as well as promoting awareness of these previously neglected diseases. Produces written information on prostate cancer.
DIPEx DIPEx Charity, 7200 The Quorum, Oxford Business Park North, Oxford OX4 2JZ Tel: 01865 487 176 E-Mail: info@DIPEx.org DIPEx (Database of Individual Patient Experiences) is an Oxford based registered charity. It is a database of audio, video and transcript of interviews with patients experiencing a particular illness or health problem. Includes a module on prostate cancer.
1in4men.com has a specific focus on urinary problems such as BPH which affecte one in four men over the age of 40 in the UK.
Malecare An American site with information on Support Groups and Prostate Cancer treatments
Health6.com An American site. Designed to be a one stop destination for anything that you can think of that is about or related to health.

Leaflets and booklets

Prostate problems? An introduction
Prostate Research Campaign UK leaflet. Covers symptoms of prostate problems, benign prostatic hyperplasia (BPH), prostatitis, and prostate cancer.

The prostate gland owner’s manual
Prostate Cancer Charity booklet. Explains what the prostate gland is, what might go wrong with it, and what the symptoms of prostate cancer are.

Prostate cancer – the facts
Prostate Cancer Charity leaflet. It covers illness, diagnosis, treatments, and commonly asked questions.

Prostate cancer – everything you need to know
Prostate Cancer Charity booklet. Detailed information on diagnosis, treatment, pain management, living with cancer, potency and impotence, benefits and sick pay.

The treatment of prostate cancer – questions and answers
Prostate Cancer Research Centre/Royal College of Surgeons booklet.
Covers illness, diagnosis and treatment options.
Free from PCRC - phone 020 7679 9366. or e-mail: info@prostatecancerresearch.org.uk

Understanding cancer of the prostate
Cancer BACUP booklet. You can view this on-line.

Target prostate
Association of the British Pharmaceutical Industry booklet. This gives information about the prostate gland and prostate disorders, including cancer. It covers drug and hormone therapies, and brachytherapy. Available on the ABPI web site (Follow the Links: APBI publications > Patients and their Carers > Target Prostate).

Books

Prostate cancer – what every man should know about the latest tests, treatments and possible prevention
Philip Dunn, Ostrich Publishing, 1999. ISBN: 0 952734 41 9. Costs £7.99 plus £1 p&p

The prostate: small gland, big problem
Prostate Research Campaign, 2000. ISBN: 1 899541 74 8. Costs £8.95 (includes p&p)

Try your local library, or order direct from the publisher.

You could also try the Macmillan website which lists a number of books on the subject

MORE UK WEBSITE LINKS

PROSTATE CANCER SUPPORT SCOTLAND
Formerly the Scottish Association of Prostate Cancer Support Groups
President: John Duncan - Algo Business Centre, Glenearn Road, Perth, PH2 0NJ
Tel: 01738 450415 -  e-mail: supportprostate@tiscali.co.uk
Scottish Charity No. SC 029158